chordatesrock: The Punishment of Loki by Louis Huard (detail) (Default)
[personal profile] chordatesrock
Guide to Writing Deaf or Hard of Hearing Characters by Devin on tumblr. (You can append /mobile to the end of any tumblr url for slightly-enlarged black-on-white text.)
chordatesrock: The Punishment of Loki by Louis Huard (detail) (Default)
[personal profile] chordatesrock
GLE Grumbles has written a description of a day with Borderline Personality Disorder. (Try adding /mobile to the end of the url if you can't read white-on-blue text.)
ysabetwordsmith: Paranormal detective Brenda in a wheelchair (PIE)
[personal profile] ysabetwordsmith
Today I'm running a Poetry Fishbowl in the series P.I.E., which you can explore via that link. This is urban fantasy about a mobility-impaired private investigator who handles paranormal cases and her accident-prone cop boyfriend.

You may also want to browse recent discussions about disability in F&SF and the vocabulary of disability on my blogs.

Please drop by my Dreamwidth or LiveJournal to leave prompts for what you'd like to see me writing along the themes of urban fantasy, life with disabilities, or romance. You can watch those posts for thumbnails of poems available for sponsorship, and at least one will get posted for free as thanks for the prompts.
[personal profile] jazzyjj
Hey everyone. Today I thought I'd post about something which I think should be pretty familiar to everybody. I originally posted this elsewhere on Dreamwidth, but I think that other comm has been abandoned. So here's my updated post to that other comm regarding getting around. Ya know, getting around and doing stuff? I'm not talking about finding one's way around one's own house, apartment, etc., or finding one's way around in a public place. That last one can get a bit iffy though, mainly depending on the size of the public place in question. What I'm talking about here is transportation, and the ability to travel outdoors independently. I am specifically referring to something called orientation&mobility, which is abbreviated as O&M. It is basically when a specialist in this field comes out and shows somebody who cannot see well--or somebody who cannot see at all--how to get around independently. There are specifics here which I won't get into, not because I don't want to but because that's not really what this entry is about. There are numerous O&M resources out there, and I'm sure if you Google "orientation & mobility" you will find them. A good website to check out though is http://www.afb.org . Another good one is http://www.aph.org . What I do want to rant about today though is the lack of formal O&M instruction I--and at least a couple others--have had within the past several years. I know that at times funding is not that great, but I would at least like a straight answer as to whom in the heck to speak with regarding a remedy for this situation. Please allow me to elaborate a bit here on my own personal experiences with this. Before doing so though, I'd like to publicly acknowledge all the O&M instructors who worked with me over the years. They all did a terrific job, and I seriously doubt I'd have the cane travel skills I do today had they not worked with me. I doubt any of them are reading this, but who knows? But here is a bit about my recent travel experience. I only go out when somebody is with me, or when I can book a trip on paratransit. I'll get to paratransit in a bit though. I've had family, friends, and neighbors show me around the area a bit. In addition, a formal O&M instructor did work with me for a very brief period a few years ago. Her solution to crossing the street independently was a card that basically said: "I'm blind, please help me across the street!" I was to stand there and hold the card, with my elbow bent, until someone happened along and maybe offered assistance. Either that, or yell and kick and scream to no end about the installation of audio or vibrotactile traffic signals in this area. I tried phoning the city about that with the assistance of somebody who was working with me at the time, and we were met with a somewhat condescending response. I'm not willing to do that again, because I have a thing about advocacy. Not all advocacy, but some advocacy. So as y'all can probably imagine, I'm rather annoyed at this and I really wish something would be done about it once and for all. I'm not always going to have someone around to help me, as much as I'd like to in certain situations. I'm sure this is true of others as well. I was told several years ago that only qualified professionals in the field should be showing me this stuff. I guess perhaps this does at least make some sense, when one really thinks about it. If there's absolutely no way to get a formal O&M instructor out here to show me what I need to know--as in physically taking me to intersections and having me travel--I would at least like to know a bit more about this area. After all, there is the ever-present safety concern which as we all know is important too.

Now, a brief discussion on ADA paratransit for those unfamiliar with it. It is colloquially termed door-to-door, or curb-to-curb in some areas. In order to be eligible for it one must meet a stringent set of criteria. Again I will not discuss this criteria here, as it is probably available by searching online. But where I live, one is only allowed to phone in their ride reservations a single day in advance, and weekend availability is iffy. It used to be that riders could only phone in their ride reservations at the crack of dawn the day prior to their scheduled trip. Often times when doing this, I would get a call at dinner telling me that my ride times had been bumped up, or some such thing. However, the call-in times were extended a bit. So I'll admit the service here used to be a lot worse, but still we're not quite where we should be in my books. So with that, I'll close this long-winded post. Thoughts anyone?
ysabetwordsmith: Paranormal detective Brenda in a wheelchair (PIE)
[personal profile] ysabetwordsmith
Based on an audience poll, there will be a bonus fishbowl session in my series P.I.E. on Tuesday, September 16. 

This series is urban fantasy about a wheelchair-riding private detective who handles the really weird cases, and her able-bodied but kind of accident-prone policeman boyfriend.  When the fishbowl theme is something that doesn't get much attention, I try to spread the word to relevant audiences.  So please tell any of your friends who are mobility-impaired or otherwise interested in this topic that it will be featured in a prompt call where they can come suggest things to be written.  If you're new to P.I.E. then you can find links to all its published poems via the series page; several these were prompted by folks with limited mobility. 

Got resources on this topic that you think are particularly good?  Articles or other links are viable prompts.  Just keep it below book length so I've got time to read it on fishbowl day.
[personal profile] jazzyjj
Hello. I am rather new to Dreamwidth and came across this comm a couple nights ago. So I thought I'd join. Hopefully people are still posting here, or will be. But I'd be happy to be listed here as a resource, and/or answer questions. I was born blind, with light perception in both eyes. I can only sense light and dark; no colors or shapes or anything of that nature. I am currently only active on Twitter. I'm going to delete my Facebook account, if I can figure out how to do that myself or get somebody with working eyeballs to help me. In addition, I help out with social media for a local nonprofit organization called JJ's List. I haven't been active with them recently, due to travel limitations and something else which I won't get into on here. But our Twitter handle is @jjslist, if any of you care to follow us. We're also on Facebook, but I'm not doing that since Facebook's accessibility with screen readers is questionable. But our website is http://www.jjslist.com . Hope to hear from someone here soon.
ysabetwordsmith: Cartoon of me in Wordsmith persona (Default)
[personal profile] ysabetwordsmith
I've been posting "No Winter Lasts Forever," a Winter Soldier fanfic that touches on limb loss and cognitive impairment among many other issues.  One of my fans asked about resources for people who have sustained major trauma but not actually lost a limb.  It turns out that I already have another character who fits this profile, Brenda Cochlain in P.I.E.  She wrecked a kayak, and while she still has her legs, they no longer function well.  She uses a wheelchair.  "Living on the Edges" deals with one of the challenges particular to variable/partial mobility.

I had little luck trying to dig up good resources about the physical and psychological impact of mangled limbs or traumatic mobility loss.  All I could find on permanent partial disability was insurance stuff.  There's plenty on amputation, but it's not quite the same thing.  I figure that issues of passing and imposter syndrome are likely, but those have only been written about in unrelated subject areas (i.e. race and academia).

Does anyone have more specific resources on the experience of people coping with major but not severing injuries to the legs or arms?  Personal perspectives are welcome along with actual articles.  Realizing that there's a big information gap tends to make me want to throw things into it, and I'd like to do justice to the topic.
stormsdotter: Cutter, a blonde elf, sleeps like the dead. (Dead)
[personal profile] stormsdotter
Hi, I'm [personal profile] stormsdotter and I have rheumatoid arthritis. (Why does this sound like an AA speech?)

I was diagnosed about two years ago. The diagnosis was tricky because I had a high RH factor, but I also camp in lyme-tick-populated areas and I was having digestive trouble, so we weren't sure if I also had celiac's. It turns out that RA in an autoimmune disorder, and people with these disorders often have other auto immune problems, like being lactose and gluten intolerant. (I have both of those too.)

So, what's RA like? If you've had your wisdom teeth out, you know how much fun that is. Now imagine that level of pain. In every joint. In your entire body.

This disease sucks. And it gets worse! Some medications can treat RA, but flare-ups still occur. For absolutely no apparent reason, a random group of joints will hurt one day and be fine the next. I tend to have flare-ups in my hands and lower back, but I know people who have hip, knee and foot problems.

My mom's a nurse, and many of her patients have RA. One of the jokes in her nursing home is, "I'd like to do ____, if Arthur lets me." (Arthur = RA.)

I'm "one of the lucky ones." I'm on Doxycycline, which is primarily used to treat malaria. It helps keep the pain to a manageable level so I'm not constantly taking steroids. The other thing that helps is daily exercise to keep the blood flowing and my joints moving. I go to the gym every morning before work. After I get home, I do an aerobic workout with my Wii. On the weekends I do a longer workout. This is what it takes for me to get close to having a normal life. I've lost a lot of weight and I look great, but my 'motivation' takes a lot of the joy out of these accomplishments.
chordatesrock: The Punishment of Loki by Louis Huard (detail) (Default)
[personal profile] chordatesrock
The Things You Say, by [personal profile] sami and [personal profile] lazulisong, is an essay on how to portray ADHD, with a particular focus on Stiles Stilinski, a character from Teen Wolf.
chordatesrock: The Punishment of Loki by Louis Huard (detail) (Default)
[personal profile] chordatesrock
Introduction

Cures, especially miraculous and unexplained cures, are far more common in fiction than in reality. Miracle cures do occasionally happen, however. I would suspect that they’re multiple orders of magnitude less common in real life, so there aren’t likely to be any others willing and able to tackle this subject. This isn’t precisely what I’m hoping for from this community (I’m not even using my own template), but it’s in keeping with the community’s general goal.

Gradual, unexplained cure )

Sudden ability gain )

Explicable miracle cures )

Just getting over it )

Return of cured disability )

Living as nondisabled )

Problematic representation )

A few final words )
chordatesrock: The Punishment of Loki by Louis Huard (detail) (Default)
[personal profile] chordatesrock
[This is an anonymous post. You can make an anonymous submission through the Anonymous Contributions post.]

Pop quiz!

1. What’s a curebie?

2. What’s wrong with functioning labels?

3. You’re not ready if you can’t give a definition for at least four or five of these (let’s say five if your autistic’s a viewpoint or really important to the story, four otherwise):
Stim
LFA and HFA
NT
Echopraxia
BAP

4. Which one of these isn’t something you can call an autistic?
a. Autist
b. Aspie
c. Square
d. Dandelion
e. Person with autism
f. Protist

5. What’s the difference between Kanner’s research subjects and Asperger’s?
a. Asperger’s could speak
b. Kanner’s had self-care delays
c. Asperger’s lived in Europe
d. Kanner’s had cognitive impairment

Click here for the answers )
chordatesrock: The Punishment of Loki by Louis Huard (detail) (Default)
[personal profile] chordatesrock
While I'm waiting for anyone to add impairment-specific information, I thought I'd post a link to a pan-disability reference list on Diary of a Goldfish. Warning: if you click the accessportrayal link and come back here, don't get sucked into an infinite loop. Getting stuck in infinite loops is against community rules. (That last part is a joke.)
chordatesrock: The Punishment of Loki by Louis Huard (detail) (Default)
[personal profile] chordatesrock
For those who want to provide information anonymously, post in a comment here (or multiple comments, if you need to) and I'll repost it to the community. Anonymous comments are screened.
chordatesrock: The Punishment of Loki by Louis Huard (detail) (Default)
[personal profile] chordatesrock
This template is meant as a guide for how to organize your informational posts. You won't get in trouble for not following it strictly, but it's meant as a guideline and to give you an idea of what we're looking for.

Definition

This is where you're nice to anyone who found your page and doesn't know anything at all about the condition. If you're happy with the standard definition of your condition, it can be copy/pasted from a dictionary if you want.

Problematic Representation

This is where you might put some current stereotypes or tropes that are inaccurate, offensive or overused. You might like to explain what's wrong with them, if they're not transparent.

Articles

Links to articles that will help people understand your disability, preferably written by people with firsthand experience and freely available online.

Blogs

If there are any blogs written by people with your disability, about your disability (or partly about it), this is where to link to them.

Books

Are there any really good books that you think explain your condition really well? For instance, have people with this disability written any autobiographies?

Forums

If you know of any good discussion forums where people with your condition congregate, you might consider linking to them here, if having curious writers eavesdrop on your conversations sounds like a good idea to you.

Ask A [fill-in-the-blank]

If you're willing to field questions, or if you know someone who's explicitly told you they're willing to field questions, or to read things over for accuracy or sensitivity of portrayal, or to discuss ideas with, then this would be the place to put that information. You might not have anyone who's willing, and that's okay, too.

Further Information

Anything important that doesn't fit into any of the other categories? Put it here! Or anywhere, really; the template's more like a suggestion than a hard-and-fast rule.

Pop Quiz!

Totally optional (like everything else). Actually, if you opt to use this category, it would be better if you made it its own post. The reasoning behind having a quiz isn't that a standardized test determines your ability to write sensitively about a given topic. It's that a pop quiz could serve as reassurance for a nervous but clued-in writer, or as a wake-up call to someone who knows less than they think they do. Either way, it helps you objectively assess how much you know, instead of having to go by a vague feeling of "hmmm... I think I know enough, but I'm not sure..."

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accessportrayal: lovingly-drawn person with ambiguous disability (Default)
Information for writers with disabled characters

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